Myoclonic-Astatic Epilepsy in Early Childhood (MAE)

                 

    (Doose Syndrome)

 

 

 

  

  

 

As with most medical disorders, the spectrum of severity seen in MAE ranges from mild to those more severely affected. Children mildly affected by MAE may find that their seizures are quickly and easily controlled with first-line medications. Those on the more severe end of the MAE spectrum may have difficulty finding an effective medication or treatment. All of the families you can read about here have found a successful way to treat their child's MAE, regardless of where he/she fits on this spectrum.

All of these families have at some stage struggled with seizure control.  Through trial and error, with patience and determination, and under the supervision of their treating doctors, these parents have found a medication or treatment that has successfully controlled their child’s seizures. This may have taken months or even years but eventually they found something that worked.

Read about what has worked for these families. ¨

 
 
 
 
 
 

     

 Ketogenic diet

 Medications

 Steroids / ACTH

 Spontaneous remission

 Faith, hope & miracles

 

 

FOR SALE
We have a brand new helmet for sale.

We bought it for our son but we never used it.

He tried it on and it fit fine, but soon after we went onto the ketogenic diet and haven't needed it!