Myoclonic-Astatic Epilepsy in Early Childhood (MAE)

                 

    (Doose Syndrome)

 
 

 

 

  

  

 

Protective helmets

Some types of seizures such as myoclonic-astatic (or any type of drop attacks) or tonic-clonic seizures may result in your child falling to the floor without warning putting them at risk of injury. If such events occur frequently, you might consider a protective helmet, especially when playing outside. Protective helmets can be made to order according to the seizure type experienced. Here is an example of a helmet made for a child who mainly experienced tonic-clonics, and was prone to falling backwards.

For seizures that tend to involve falling forward, a face guard is often necessary.

Some parents find that soccer, or hockey type helmets are useful, and more socially acceptable when playing outdoors. The martial arts-style helmets are also useful as they are lightweight, waterproof, and available in a choice of colours. Face and chin guards are also available for these helmets.  Sports helmets such as hockey and bike helmets may be quite heavy and uncomfortable, and it is important to note that they are not specifically designed for protection in the event of a seizure.

Your local epilepsy organisation or hospital will have a list of recommended protective helmet suppliers in your locality. The helmet pictured here (left) is from www.macho.com. They have many different styles, as well as chin or face guards available. Here are some other links to helmet suppliers:

http://www.plument.com/protectacap.htm

http://www.danmarproducts.com/index.cfm?pageSRC=catalogSearch

http://karateshack.cmasdirect.com/itemView/view/ProShop.pml?productId=4649

http://www.karatesupply.com/sparring_head.htm


http://www.showeryourbaby.com/lihebysapr.html

http://www.full90.com/showcase/full90_premier.asp

http://www.onlinesports.com/pages/I,TK-508DHG.html


TIP: Do a google search for "martial arts helmet", "karate helmet", "hockey helmet", "bike helmet safety", "special needs helmet" to find suppliers in your locality. 

 

 

 

u See also Safety - Protecting your child from injury

u See also Safety - Educating your caregiver ¨

 

 
 
 
 
 
 
 
 
 

     

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This helmet with a full face guard comes highly recommended by Heather, Zaki's mum. It's available from Danmar Products (see link above).