Myoclonic-Astatic Epilepsy in Early Childhood (MAE)

                 

    (Doose Syndrome)

                                                              

                                                                                                                            

Macie
 

 

 

  

  

 

Myoclonic-Astatic Epilepsy (MAE), or Doose Syndrome, is an epilepsy syndrome of early childhood that is often resistant to medication. For this reason, it can be difficult to treat. MAE is an idiopathic generalized epilepsy, meaning that there is no known cause for the seizures (idiopathic) and the seizures originate from all over the brain (generalized) as opposed to coming from one focal area. Onset of MAE occurs commonly in the first five years of life, with the mean age being three.  Statistics show that it usually affects children who have previously developed normally, and boys are twice as likely as girls to develop MAE. In some cases, other family members (immediate or extended) may also have seizures.

As researchers learn more about MAE, new treatment options become available and the outcomes continue to improve for our children. Parents new to MAE can be encouraged knowing that many families and their doctors have found successful ways to treat this challenging disorder. You can read about families' personal experiences, learn about treatment options, connect with other parents, and gain insight into successful management of MAE on this website, or contact us directly.
 

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This is Will who has been seizure-free for six years after battling MAE and winning !  Visit What's Worked to read his story as well as the stories of many other children who are now living seizure-free or reduced-seizure lives.
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